A Treatment Is Closer Than Ever.
Your gift can help save a child’s vision.
Children with USH1B are born deaf and experience rapidly progressive vision loss. Today, promising new technologies and a focused research strategy give us credible paths toward finding a treatment. How many programs we can fund—and how quickly we can advance them — depends on the funding we raise.
- $3M+ invested in USH1B research
- 7 scientific programs funded
- Multiple treatment paths being pursued
How one diagnosis became a mission to save children's vision.
Our daughter was born deaf. Five months later, we learned why: she had Usher syndrome type 1B, a rare genetic disease that also causes severe balance challenges and progressive vision loss. The thought that a child already navigating deafness could one day lose her sight was impossible for us to accept.
What began as a fight for our daughter quickly became something bigger. We founded Save Sight Now to bring urgency, funding, and focus to the research that could protect the vision of children with USH1B.
Today, donor support has helped fund seven research programs and direct more than $3 million toward USH1B science. Every gift helps determine whether we can find a treatment in time to save the vision of thousands of children.
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