Save Sight Now
Your gift is helping fund life-changing research for children who are losing their sight due to Usher syndrome type 1B.
Our $250,000 matching Jumpstart Campaign is live!
All donations will be doubled until the end of the year.
How one diagnosis became a mission to cure childhood blindness.
In 2018, we learned our daughter was born with Usher syndrome type 1B - a rare and aggressive genetic disorder that causes deafness, balance issues, and progressive blindness. Most children with USH1B go legally blind in adolescence.
What began as a diagnosis for one child became a mission to save the sight of thousands. We launched Save Sight Now because no one else was prioritizing USH1B research. Today, we’re funding innovative gene therapy programs, supporting critical natural history studies, and helping move treatments toward clinical trials.
To date, donor support has enabled:
– 7 research programs launched
– $2.4M+ raised for USH 1B science
This is a race against time - but thanks to your support, there’s hope.
Activity