Save Sight Now
Your gift can help save a child’s sight.
Children with Usher syndrome type 1B are born deaf and are rapidly losing their vision. Promising science exists today. Your donation funds the research needed to turn that science into treatments before their world goes dark.
How one diagnosis became a mission to cure childhood blindness.
In 2018, we learned our daughter was born with Usher syndrome type 1B - a rare and aggressive genetic disorder that causes deafness, balance issues, and progressive blindness. Most children with USH1B go legally blind in adolescence.
What began as a diagnosis for one child became a mission to save the sight of thousands. We launched Save Sight Now because no one else was prioritizing USH1B research. Today, we’re funding innovative gene therapy programs, supporting critical natural history studies, and helping move treatments toward clinical trials.
To date, donor support has enabled:
– 7 research programs launched
– $2.4M+ raised for USH 1B science
This is a race against time - but thanks to your support, there’s hope.
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